Whether you’ve just received a diagnosis yourself or you’re supporting a loved one, hearing the word ‘dementia’ can fill many of us with dread. We all know that dementia typically gets worse and there isn’t yet a cure. Preparing for what is to come is important – while every person’s journey is different, dementia typically follows three stages.
This post explains more about what to expect in these three stages and how you can prepare in order to make the most of each stage.
Early stage
In the early stage, changes are often subtle: misplaced items, trouble finding words or difficulty managing finances. Many people are able to remain independent during this stage, which can include working, driving and maintaining relationships, but they’re aware that something is not right.
Early stage dementia anxiety is common. People worry about the future, fear of losing independence and uncertainty about telling friends or employers. Emotional support during this stage can be important – talk to a counselor, join support groups and open up to trusted family members.
Dementia can progress at different speeds, but for many people the early stage lasts several years. It’s important to make the most of your full independence while you have it. This includes discussing future wishes with loved ones and organizing legal and financial documents. It also includes taking vacations, immersing yourself in passions and hobbies and spending quality time with friends and family.
Engaging your brain with puzzles and problem-solving activities may help to slow down dementia. You can also establish routines and start using memory aids like calendars, alarms and labels to maintain independence longer.
Middle stage
During the middle stage, confusion and forgetfulness become more noticeable. Tasks like cooking, managing medications and handling money will typically require supervision during this stage. Mood changes, sleep problems and wandering also emerge during this stage, which can prompt family members to explore professional caregiving options.
Adult day programs, in-home care services and facilities that offer memory care for Alzheimer’s patients are all worth looking into. Such professional services can not only reduce the personal strain on loved ones, but also provide a safer environment and social interaction for those affected with dementia. Even if you’re not quite ready yet, it’s important to do research during this stage.
Start simplifying the home environment and make sure predictable routines are already in place. During this stage, caregivers should remember to look after themselves – burnout is very common and can lead to its own health issues.
Late stage
In the late stage, a person will likely need full-time assistance. Communication becomes very limited, and there may even be struggles with movement or bodily tasks like swallowing. Comfort, dignity and connection are all main priorities.
Families often need to consider help with personal hygiene, feeding, mobility and managing medical issues. Working closely with healthcare professionals is advised – many look into nursing homes at this stage for full-time care or regular respite care.
Even when words are few, non-verbal connections matter like gentle touching, music and familiar scents.
